First Link

Alzheimer Society Grey-Bruce
Barbara Fox R.N., First Link Coordinator
753 2nd Avenue East, Owen Sound, Ontario, N4K 2G9
519-376-7230, 800-265-9013, bfox@alzheimergreybruce.com 

WHAT is First Link™
• A program of the Alzheimer Society Grey-Bruce funded through the South West LHIN Aging at Home Strategy.

WHO should be referred to First Link™?
• A person with a diagnosis or evidence of dementia of any type (Alzheimer’s, Vascular, Lewy Body, Pick’s, etc.)
• A family member or friend of a person with dementia

WHO can make a referral to First Link™?
• Physicians. (The 3rd Canadian Consensus Conference on Diagnosis and Treatment of Dementia specifically names physician referral to First Link™ as part of medical best practice for the management of mild to moderate Alzheimer’s disease.)
• Other caring professions (Social Workers, Nurses, Nurse Practitioners, Clergy etc.)
• Self referral

WHEN should a First Link™ referral be made?
• First Link™ referrals are accepted at any stage of the disease.
• Ideally, soon after diagnosis. Research supports that people who receive counselling and support services early in the continuum of the disease and receive that support on an ongoing basis are better equipped to face the challenges that arise. (M. Mittleman, 2007)

WHAT does First Link™ offer?
• A First Link referral connects the person with their local Alzheimer Society for learning opportunities, support and linkage to community services appropriate to their stage of dementia from pre-diagnosis to post-death grief support.

WHY First Link™?
• Often, people do not contact the Alzheimer Society or other support agencies until a crisis situation arises
• To get people connected early in order to reduce the number and intensity of crisis situations
• To reduce caregiver burnout and pre-mature long term care placement

HOW does First Link™ make a difference?
• First Link enhances linkages between the Alzheimer Society and diagnosing primary care physicians and other health care providers
• Increases understanding and awareness among family physicians and allied health professionals
• Increases understanding and awareness among individuals with dementia and their family members, and to increase coping and confidence of caregivers and self-efficacy and self-management
• Improves coordination of care and linkages to community services for non-medical management issues from time of diagnosis through the duration of the disease

 

Our First Link Team

Barbara Fox R.N., First Link Coordinator

Rachelle Shipley, RSSW, Family Support Counsellor

Larrilee Leckie, MSW, Family Support Counsellor
 

Kimberley Hodder, Family Support Counsellor

Laura Balletta, BSW, Family Support Counsellor

Sandra Hong RPN, Public Education Coordinator

Let our team of dementia care experts make the journey of caring for someone with dementia a little easier.

 

Here’s what some of our First Link clients have said:

“Thank you so much for all your knowledge and support. I can now face the future with more confidence that I can effectively advocate for my husband as his dementia progresses. I have a better idea now of what to expect in the months ahead and how to handle his behaviours. I have started him in Day Away – I never thought that would happen, and I’ve been going to Alzheimer’s Support Group each month. Finally, I’m realizing I have to take care of myself first if I want to be there for Jack.”

First Link Learning Series Participant
                                                                                                  

“I am most thankful for your kindness at a very difficult time. After speaking with you I had the courage to approach our doctor a second time about changes in my husband’s behaviour. He listened and now we are closer to a diagnosis. Thank you so much for your help”

Family Support recipient
                                                                                                                          

“You are making a wonderful difference in our area by educating us about this devastating disease. My brother in law has been in Long Term Care for a year or so and we need all the help and information we can get. Sometimes it’s very hard, but he’s quite good at times, for which we are thankful. Keep up the good work.”

Family Support Group member
 

“For ages we’ve encouraged our Mom, who takes care of Dad at home, to come and meet you. She always said she was too busy or would put it off until a better time which seemed to never arrive. The video and books you suggested we borrow plus the great information pamphlets you gave us have made a big difference for her. I noticed your number is now posted on her fridge. Thank you for being there when we needed you.”

Family Support Group member
 

I can’t express how much it means to finally be able to sit down with people who know what it’s like day to day. I used to feel so alone. The information you’ve given me about memory loss has made it easier to understand my Mom and allowed me to enjoy our time together more than I’d been able to for the past year.

Family Support Group member
 

I’m so thankful you were here. Every time my Dad wandered my family and I panicked. We were close to moving him to a Long Term Care facility. Your excellent suggestions on how to prevent wandering, and what to do when he wanders, gave us a plan. We now feel prepared to keep him with us at home for longer.

Family Support recipient
 

I feel so much better after talking to you. We have had so many questions since my husband was diagnosed with Alzheimer Disease. Legal issues, power of attorney and advance care planning became much clearer with your help. Thanks for telling me about day programs. George went last week and really enjoyed it, giving me a chance to run my errands and have a break.

Family Support recipient
 

“Now that I know how dementia can rob a person’s ability to read, speak, or even recognize people etc., I realize that there are things I could have and would have done differently if I had known. This is why I think it’s so important for the family to know what’s coming and how to handle it. Even if your loved one goes into Long Term Care there are still many do’s and don’ts you should know.”

Family Support recipient

 
 

First Link™ Features and Benefits
 

First Link™: A Unique Program

• Evidence shows that people who are provided counselling and support services early in the continuum of the disease and receive that support on an ongoing basis are better equipped to face the challenges that will arise.

• First Link™ is a referral program that links the person with dementia and their family members to a community of learning, services and support.

• First Link™ is funded through the Aging at Home strategy to walk the journey with the person with dementia and their family members.

Benefits

• We walk the journey with the person with dementia and their family members as no one else can from diagnosis to death

• First Link™ creates a partnership with family physicians and their office staff

• First Link™ links your pts with a Team of experts in dementia care & support


First Link™ : A Referral system

• The physician makes the referral and our staff then contact the person with dementia or their family member recognizing that often it is simply too hard for them to do this on their own.

• In the initial contact we establish a relationship, answer questions and invite the person with dementia or their family member to participate in a First Link Learning Series, and connect them with community programs and services such as Day away programs, Meals on Wheels, DriveAble testing, transportation services, etc.

• We offer individual and family counselling, and support groups.

• We contact person with dementia or their family member within 4 weeks of receiving the referral

• The referring physician receives a letter to acknowledge receipt of referral

Benefits

• Follow up is assured

• Patients receive earlier connection to support, community services and education.

• Well informed and well supported persons with dementia and family members place fewer demands on physician time.


First Link™: Saves Physician's Time


• Family physicians and their staff don’t have to teach persons with dementia or their family members about the disease process

• Fewer calls from Long Term Care Homes regarding family concerns

• Fewer calls to the office from family with questions

Benefits

• Time and resources are freed up for other areas of practice and personal time



First Link™: Means  Improved Patient Care


• Patients receive appropriate links to community resources and supports

• Family members gain an increased ability to handle behaviours

Benefits

• Reduced usage of emergency departments, alternate level of care beds and Long Term Care Home admissions is anticipated

• Family experience improved understanding of driving issues and other tough issues such end of life care, Power’s of Attorney’s etc.


First Link™: Means Knowledgeable and Well-supported Patients and Families 

• The person with dementia and their family members have a better grasp of the disease process, treatments, and recommendations.

• There is better participation in planning of care

• Family caregivers have improved knowledge, skills and confidence.

• Family caregivers are better able to develop self care strategies

Benefits

• Family caregivers are more willing to work with the physician’s recommendations

• Reduced caregiver stress means fewer crises, fewer office and emergency department calls or visits, and less in the physician’s practice

• Improved overall health status for the caregiver

 

Is First Link™ For You?

Learning
First Link provides you with the opportunity to learn about every step in the Alzheimer journey. This learning series offers information about diagnosis, day-to-day living, positive approaches to care, strategies for challenges and how to prepare for the end of life.

Services
Connects you to Alzheimer Society programs and services, and provides information about other community and health care services.

Support
Connects you with an opportunity for individual support or support groups. 

If you or a family member has been diagnosed with Alzheimer's disease or a related disorder First Link is for you. This direct referral program links the person with dementia and their family members/caregivers to coordinated learning, services and support from diagnosis and through the continuum of the disease. Contact our office and speak to one of our counselling staff for further information.

Online Referral Form